My life is...
Only my son would be admitted to the hospital on Halloween. 
Just so you know, he is fine. He has just been fighting influenza like symptoms since Sunday, and then today decided to spike a temp of 106.5. 
Yes the temperature is correct. It was taken several times by several different people with several different thermometers.
His temp has broken now. And as you can see….he is sleeping soundly!
I guess he decided to be a hospital patient for Halloween.

Only my son would be admitted to the hospital on Halloween.
Just so you know, he is fine. He has just been fighting influenza like symptoms since Sunday, and then today decided to spike a temp of 106.5.
Yes the temperature is correct. It was taken several times by several different people with several different thermometers.
His temp has broken now. And as you can see….he is sleeping soundly!
I guess he decided to be a hospital patient for Halloween.

Full Circle

When Isaac was a baby, we spent an unreasonable amount of time taking our son to the emergency room. We encountered nurses and doctors that had never seen the syndrome that Issac has. It was always a true emergency when we brought him in, you know not like those other emergencies that are there because their pinky toe hurts, but we were taken directly back into a trauma room to assess his breathing, start an I.V. and get X-rays……
We were kind of a big deal.
Yesterday I was the nurse in that scenario.
Now let me remind you that I only work in the emergency room once in a while. And a couple of weeks ago when I was working I met this family when they had come in. The child has a rare syndrome and can decline in health quickly so they need to come straight to the ER.
I was there yesterday when they came in again.
We were super busy and I didn’t even know that family was there until a very experienced tech grabbed me to look at a kid who was having trouble breathing. I walked into the room and there they were. And I could instantly see the panic and the relief in the moms eyes. Panic because her son was as white as a ghost and relief because she just saw a familiar face.
I looked at the boy and panicked inwardly and set to work hooking him up to the monitors and pumping the mom for information. Then I went and got the doctor.
Then we worked as a great team to stabilize and transfer the kiddo to a hospital that specialized in pediatrics.
We poked and prodded him to get an I.V. and to be able to get labs. We sent him for films we pushed meds and gave him fluids while the mom just looked on in a panic. I had two patients now. I kept trying to reassure her that we were doing the best we could for him and that he looked like he was improving.
Now let me also mention that since I only work there per diem I have never worked with the attending doctor on that day. So in the midst of all this chaos we were trying to figure out if we could trust each other.
No pressure.
It all turned out well in the end. We transferred him to a pediatric specialty hospital and the attending figured out that I was competent as an emergency nurse. He didn’t know that I was an ICU nurse and that I had a special needs child as well. You could almost feel his relief when I told him those two small yet important facts about me.
But as I was saying goodbye to the family as the medics were taking them to the ambulance I admitted that it was no easier being on the other side of that situation. I had tears in my eyes as they left. It brought back so many memories that live in the way back of my brain. I remembered being that mom and having that feeling of sheer and utter terror as I had no control of what was happening. It’s terrifying.
God was definitely present yesterday.

Dear everyone…

Thank you so much for all your out pouring of love and support yesterday while my little man was being brave!

It meant a lot to me!

I love you all. The support I get from you means so much to me that I can’t really find the right words for it, but know that it is so very much appreciated!

Elisha

* on a side note. I had to go to work as soon as I dropped Lucas off at home. Stayed late at work and didn’t get home until around 1am. Today I’m getting called in at 3pm to float to a different unit. I’m tired. :)
Long time listener…..first time caller!

I’ve always loved that line. It makes me laugh whenever I hear it.

Why you ask? I have absolutely no idea.

So lets do whats been going on lately in bullet points shall we, because I’m to lazy to put it into a full on story and it just makes it easier for y’all to skim through.

  • Found out in the last 2 weeks that my little man is growth hormone deficient as well and now he has to go for a growth hormone stimulation test in Apirl. YAY….NOT!!
  • Finally got a cover for my Kindle Fire and now the poor thing is getting used and abused regularly. It hardly leaves my person.
  • I have read The Hunger Games and now gonna start reading some Star Wars books.
  • I went to Maurices the other day to buy some capri’s and ended up getting a line of credit. Who knew?
  • I was made full time at work! I’m so happy about this I can hardly believe it! This makes getting 40 hours a week a TON easier! :)
  • My good friend has managed to find me all my oldie but goodie romance novels in pdf and now my Fire is loaded with all my “go to” books!
  • I went to Old Navy today to get my kiddos some flops and the big two can both fit in a woman’s size 5! UGH!
  • My husband managed to stay home all weekend and veg with me. He NEVER does that.
  • My kids have been on spring break the past week and a half.
  • I FINALLY got to meet my beautiful niece last weekend! She is perfect!
  • I have been literally working my ass off, hence my absence….but I love my job and I miss my tumblie’s!
The boy who lived….

My oldest, Isaac, will be 11 tomorrow!

11.

He wasn’t supposed to live to see 1.

The doctors told me to plan a funeral not a first birthday party.

Now he will be 11.

The feeling is the same and just as strong this year as it is every year of overwhelming joy and gratitude that he is still on this Earth.

That little boy changed my life the minute he was born. As he has grown and had to face challenges in this world that you never want your child to face or expect them to face, he has always done so with a smile on his face. He loves to be around people. He loves his family. He loves music, games and life in general. He sees the good in everyone. He tries to be everyones champion. If one of his siblings is getting yelled at, even if it’s because they did something wrong to him, he still sticks up for them.

He enjoys life. He hardly ever complains when he is in pain. Even if he has a raging ear infection or strep throat that would make any adult cry in agony, Isaac just states that he doesn’t feel good.

He has had to endure more pokes, prods, procedures, xrays, scans, examinations, etc., etc., since birth and every year than most children his age. But he walks in to the doctors offices with a smile on his face now.

Every adult that has ever met my son has walked away from meeting him stating that he has put a whole new perspective on their life. He faces everything with a smile on his face and giving 110% effort. Something we as adults forget to do.

I have said it before and I’ll say it again….I want to be like my son when I grow up.

Everyone could take a page out of his book.

So Happy Birthday my big man! I love you so much that words cannot describe what I feel for you. Our family would not be the same without you. I hope the future brings you great things.

We love you Isaac. Thank you for choosing us to be your parents. You knew we needed you more than you needed us!

I love getting good news from doctors for a change!

We went to the University of Iowa Children’s Hospital and Clinics today for Isaac’s 6 month check up with the endocrinologist and actually got good news.

I hardly ever get good news from all the specialists we see up there and we see several….

  • Endocrine
  • Neurosurgery
  • Otolaryngology
  • Genetics
  • Neurology
  • Ophthalmology
  • Pulmonology
  • Center for Development and Disability

Yes that’s quite a list. There was a time when I would take my toddler and my baby girl for all day visits and see 3 clinics at once. That didn’t work out so well after a few trial runs so I decided that driving the 45 minutes there and back for one appointment wasn’t so bad.

Now we have Lucas as well. He was born with the same syndrome as his big brother. So he sees all the same clinics except Neurology and the CDD. And plus now I have a big Yukon Denali gas guzzler with a built in DVD player that has made traveling back and forth so much better.

So today we learned that Isaac is still responding great to the growth hormone injections he receives 6 times a week! He is now 4 feet tall and weighs 60 pounds! He is still a little on the short side for his age (he will be 11 in 16 days!!!) but at least he is growing at a better rate than he was before we started the growth hormone! I am so excited for him! I’m so glad that something is working out for him. He deserves it!

He’s my hero!

The Arguello Family on Isaac’s Wish trip in 2007! This was the vacation of a lifetime! He had the best time. Well……we all did. We all still talk about that trip, of course except for Lucas. He was too little to remember.

The Arguello Family on Isaac’s Wish trip in 2007! This was the vacation of a lifetime! He had the best time. Well……we all did. We all still talk about that trip, of course except for Lucas. He was too little to remember.

My youngest is 5 today!!

Momma is happy but sad! I have no babies anymore! Why won’t they just stay little forever!

Anyhoo, enough of my whining!

Happy Birthday Lucas! Mommy loves you so much that sometimes I don’t have the words for it!

Please take a minute to look at Isaac’s photos from being Kid Captain for the Iowa/Northwestern game Saturday. The Hawks did win!!! And it was a great time for everyone!

There is a video if you click on his picture and a small story about us. Hope you enjoy!